Bay Area Association of Kidney Patients (BAAKP)
An all-volunteer, non-profit organization formed to educate and support Bay Area kidney patients, families, and physicians. Activities include news, letters, lecture events, and other educational materials.
American Association of Kidney Patients (AAKP)
A patient-led organization dedicated to improving the lives of fellow kidney patients and their families by helping them deal with the physical, emotional, and social impact of kidney disease.
National Kidney Foundation (NKF)
The NKF is a voluntary health organization. Initiatives include public and professional education, kidney early evaluation screening program, research, and other patient services including emergency assistance. The society publishes the American Journal of Kidney Diseases, Advances in Chronic Kidney Disease, and the Journal of Renal Nutrition.
Dialysis Patient Citizen (DPC)
Nationwide, non-profit, patient-led dialysis organization working to improve the quality of life for all pre-dialysis and dialysis patients through education and advocacy.
National Kidney Disease Education Program (NKDEP)
From the Department of Health and Human Services, a comprehensive web-based resource for patients and providers alike. It provides a large number of educational resources from video podcasts regarding frequently asked questions to nutritional resources.
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
The NIDDK conducts and supports biomedical research, disseminating research findings and health information to the public. The clearinghouse provides information about diseases of the kidneys and urologic system to people with kidney and urologic disorders and to their families, health care professionals, and the public.
Podcasts - University of North Carolina Chapel Hill
Very useful informational material in the form of podcasts devised by Dr. Ronald Falk, one of the leading experts in the field of glomerular diseases. Podcasts include patients’ perspectives, stress management, diabetic renal diseases, and various forms of glomerular diseases.
An interactive web-based learning program designed to help people learn what they need to know to understand kidney disease and its treatment options. Includes sixteen modules with topics varying from treatment options to staying active with kidney disease.
Lifeoptions rehabilitation program
A program dedicated to helping people live long and live well with chronic kidney disease. Offers technical support and educational materials including a kidney glossary, tips, and stories from patients/ professionals, and message boards.
Home Dialysis Central
A website dedicated to raising awareness of peritoneal dialysis and home hemodialysis. From message boards, locations of home dialysis centers to detailed descriptions of available home therapies.
The American Kidney Fund (AKF)
The AKF is a large charitable organization and has become the nation’s leading non-governmental source of assistance for patients on dialysis. HelpLine provides health information and resource referrals to patients in English and Spanish.
Hypertension, Dialysis and Clinical Nephrology
Provides selected information on renal disorders and their treatment, and hypertension, dialysis, and clinical nephrology topics. Requires free registration and offers a more comprehensive service for paying subscribers.
NDT-Educational for Kidney & Blood Pressure related disorders
An educational site with forums, selected articles, editorials, and CME modules.
Uptodate for patients
Evidence based clinical resource synthesizing the most recent medical information into verifiable evidence–based recommendations. There is an option to access more comprehensive information for a membership fee.